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March 11, 2004

Taking Great Strides

Joe and I took a six mile walk on Sunday along the Minuteman trail. Six miles is a little bit, but not too much.

Six miles is what I'll be walking in May for the Cystic Fibrosis Foundation's GREAT STRIDES.

One of my very good friends has Cystic Fibrosis. He's an awesome kid and you probably wouldn't know he even has CF until you realize that he coughs a bit more than most people and that he ends up in the hospital every few months to undergo weeks of antiobiotics via IV. The ONLY really great thing about it is that he gets out of school...and I can go hang out with him and play video games.

Otherwise, having CF really sucks.

Cystic Fibrosis is a genetic disease that makes breathing a major chore for those with the disease. CF causes life-threatening lung infections and the average survival age of those with the disease is the early 30s. Currently, there is no cure and the future of those with CF lies in the hands of people like you and me.

I wrote a poem for my friend's sister, who lost her life to CF two years ago. You can read it at the Rose & Thorn Magazine. No one should have to lose their sister, or their child, and I want to do what I can to make sure my friend is around for a long fucking time. My mom knew one of the oldest CF victims. She was 54!! I'm doing what I can to help find a cure for this disease so that my friend and all kids with cystic fibrosis can be around much much longer than that.

My goal this year is to raise over $500 and I would really appreciate any help you might be able to give me to help me meet this goal. Any amount would be helpful. $10, $20...anything. Every little bit counts.

There are two ways you can donate.

One: write me with your email address (I can be reached at: poetess AT crystallyn.com) and I'll send you a link directly to my online campaign through the CF foundation. You can pay online from the personal link (from the CF Foundation) that I send you.

Or: you can go https://www.paypal.com and use Paypal to donate. My email is poetess AT crystallyn.com. Either way, I can count it toward the walk. If you use Paypal, please make sure you note Cystic Fibrosis GREAT STRIDES Walk Donation so that it will show up on your receipt.

Your donations, of course, are tax deductible. I will be walking the six mile walk in May, so if you can't help now, maybe you will think of me again in a few weeks when I repeat this post.

To learn more about CF, visit the CF Foundation's Web site at http://www.cff.org, or call (800) FIGHT CF.

Posted by crystallyn at March 11, 2004 07:59 PM

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Comments

oooooh pretty. I like the new image!

Posted by: Shanna at March 14, 2004 06:40 PM